Looking for Fibro/ME sufferers any others?

[Starchild]

Our Dads was from 1950 in Singapore. I know his malaria was recurrent, practically anually you could guarantee it.

I know tick bite can cause lyme disease in some cases.

I must admit I got worse after taking Larium before I went to South Africa, so bad that when I got back I never returned to work and haven't worked since (1996). I was told by one doctor that some of the symptoms were related to Gulf War Syndrome which they believe was related to Larium. The annoying thing was, where I stayed in Africa was malaria free, so I needn't have taken it in the first place.

I think though that FMS/CFS are syndromes not with any one cause, it's like a build up of things.

[SarzWix]

I first fell ill in 1995, I was diagnosed in 2005. 10 years waiting for a diagnosis. I had severe growing pains from the age of 8 and have had knee and ankle problems since I was 9/10.

Unfortunastely FMS has been found to be hereditary, my eldest is 10 and starting to complain of achy joints. The Dr has put them down to growing pains but recent research in the US has shown a definate link between severe growing pains and FMS.

Have you been checked out for Hypermobility Syndrome or EDS, Starchild, Janeyo & Catrina? It is often the common denominator for all the things you have described; So called "growing pains" from a young age, joint problems from a young age, FMs &/or CFS/ME. Have a look at The Hypermobility Syndrome Association - hypermobility syndrome, bjhs, beighton, joint, hypermobility, minor, score, benign, ehlers-danlos, diagnostic, syndrome, laxity, ehlers, brighton, criteria, rheumatology, association, eds, minor criteria, majo for the diagnosis criteria, and also a really good forum, where you will find a whole heap of people suffering from the same problems
Have you ever had problems with local anaesthetic (incl dentists) not being effective enough or not working at all? That can be a common problem in HMS/EDS too

[squashysu]

Have you ever had problems with local anaesthetic (incl dentists) not being effective enough or not working at all? That can be a common problem in HMS/EDS too

hi sarah and everyone else suffering, i do really feel for you as sarah knows i am a HMS sufferer and so is my daughter, she has been in cast for the last week as her knee pops in and out constantly!!!!

anyway this last bit you put is the interesting bit sarah, as i was awake through an operation some 6 years ago!!!!!!!! the worst thing ever in my life, but the bloke giving the drugs (i cant spell his name) gave me the muscle relaxant and i couldnt tell them i was awake - i have suffered with nightmares ever since!!!! also the dentists never work for me either, what a life we lead, in constant pain, awaiting more ops and not knowing if i will be awake during them, i think they will now try and give me locals cause at least then i can tell them i can feel it!

SS

[SarzWix]

i think they will now try and give me locals cause at least then i can tell them i can feel it!

SS

HAH!!!! You can tell them, but don't expect them to take any notice!! I had an op on one of my fingers with a local & was in absolute agony throughout, and they didn't believe me ! The poor nurse sat next to me with her hand crushed by my other hand, SHE believed me! They made a right mess of the op too (my fault for moving, apparently) I've got a slightly floppy middle finger on my left hand now

[Catrina]

Funny you should mention Lyme Disease as I had it about 10 years ago. We were camping in the Lake District and whilst walking on the fells came across a sheep that was tangled in barbed wire. We both had to work to get it free and then we went back to the tent. Although I had a shower that evening it had already bitten my back.

I got the classic bulls eye mark on my back. Although it was treated with large doses of antibiotics I dont think it has ever left me.
And over the years have had problems with my joints and feet I had forgotton about LD till this posting. It could easily be the thing that started my problem off. You never know.

And dentists injections dont always work for me.

[Two_Sheds]

I wake up full of good plans and intentions for the day and go to bed cheesed off if I haven't achieved anything worthwhile. I know that there are days where I can't do things (and retaining instructions is hard sometimes) and I have days where I can't even keep track of a sentence from start to end. The biggest problem is the frustration, the pain can be bad

that's me, that is I've seen a dozen doctors and had a dozen diagnoses, and all kinds of pills. What really helps my pain is shiatsu (deep tissue) massage, and weight-training on the specific areas of pain (upper back). Trouble is, I can't afford these treatments, and nor can the NHS. They are more than happy to dole out the smarties that don't work though ... it keeps pharmaceuticals in profit, huh?