Hi Terry

I am sorry for your news of a difficult road ahead. I think Alice, infact everyone, has very sound advice.

I certainly contacted a group that put me in touch with other families when Joel was born ( he has quite a rare syndrome) Even the word syndrome sent me into depression for a long time. We had agonising decisions on operations etc. spent days and weeks at hospitals all over the place for years...costs a fortune as well- even with the NHS. He really seems to be through the worst of it now...but the big thing is he is a really nice happy kid. He brings the whole family so much joy and laughter. I just found that difficult to see at the beginning (especially after the nurse at the scan painted an incorrect picture of me spoon-feeding him for life.)

My point being that, whilst I know little about it, the couple of autistic children I do know are just fantastic people, loving and enthusiastic. There are some dedicated and excellent professionals out there. You may probably ( I pray) find that things will not be as dark as they seem today. All children will have some problems one way or another. 'Special' (I like to think) children are often even more loveable and rewarding.

I know a superb speech therapist at Gr O Street and a friend teaches autistic children, if either of those contacts could help- let me know. Otherwise just know I understand a bit and am rooting for you.

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